Hi, I'm Kate, & I'm nearly 42 years old.
I was diagnosed with highly active relapsing remitting multiple sclerosis on 27.11.2008. My life as I knew it suddenly disappeared, & I was faced with THIS. Slowly I got to realising that everything is possible, it's how you get to it, that changes.
I have been on numerous DMT'S, including Tysabri, & relapsed on them all.Â My last treatment was Lemtrada/Alemtuzumab in Jan '18.
l am a mum to two lively little boys, who are 4 & 7. Sometimes it's challenging, but I wouldn't want it any other way, they are my life, & MS wasn't going to stop me having children!
I'm engaged to Nick, & we're getting married next year! If you need any help or Information on anything, please get in touch, nothing's off limits!
I look forward to meeting you at one of our events!
Hi, I’m Lynne and one of the founding members of Many Scars.
My daughter has had MS for 10 years so I know what it’s like to be a parent of someone with the condition.
I’ve been there through all the emotions of diagnosis including anger and the tears of frustration (hers and mine!) and all the challenges that MS brings but also the positivity and determination she has to keep going and the happiness when a difficulty has been overcome.
I’ve got lots of empathy and plenty of experience in listening, and giving support both emotional and practical.
If you’re a family member who needs a listening ear or someone to have a rant at, feel free to contact me at any time.
My name is Nick Jarvis, I was diagnosed with Multiple Sclerosis in December 2010 after many years of experiencing strange feelings within my body. It was a shock to be diagnosed but answered so many questions.
At the time I was self employed, so had the option of working less hours, as the most severe symptoms of my ms at the time were fatigue and pain.
It took me a while to get my head around the condition and how to cope with all the strange feelings associated with it. Within 18 months, I had stopped working and found myself getting into a rut and suffering with depression, which now, I know, is quite normal for most people after diagnosis. Then, remembering to take hand fulls of tablets three times a day was my next challenge!
After a year of doing pretty much nothing, I asked at my local MS Society Centre if there was anything I could help with, I needed to get out of the house, I was going stir crazy. I became a volunteer working 4 hours a week. I was soon approached and asked if I’d like to train to become a volunteer welfare and benefits advisor at The MS Therapy Centre Norfolk, an opportunity I jumped at. And this is what I did for 4 years, until the dreaded fatigue came back with a vengeance!
Kate and I started Many Scars in November 2017, after discovering there wasn’t any support for those that had been newly diagnosed, those living a life with no meaning, hadn’t met anyone else with ms or simply wanted to talk about their ms with like minded people. Many Scars has grown so much over the last 12 months, which is exactly what we wanted. We continue to provide an outreach service for those who would like to meet on a one to one basis. We can meet you wherever you feel comfortable, whether that’s at your home, or in your local coffee shop for example. We are always looking for new ideas or places to meet.
I still provide welfare and benefit support to members of Many Scars. I can assist in the completion of benefit application forms, give general advice on benefits and can signpost you to other services/people available to you locally.
I hope to meet our new members soon, along with our current members too. Keep an eye on our events page.
Hi, I’m Steve, I was diagnosed with MS in 2008 after complaining about weakness down the left side of my body. I carried on working as a Tree Surgeon for the next eight years! I had to stop work in 2016 following a major relapse, which made it impossible to return to my business as a tree surgeon. I sold my company and was forced, like many other people with ms, into the benefits system.
I don’t get that many problems, apart from some of the more common ones i.e. fatigue, weakness and the tingles all down my left side. I use a combination of my chair, which makes me feel at less risk to myself and others, and I occasionally use a stick , like in the house.
I currently play Wheelchair rugby for the Norfolk Knights, based in Wymondham. I am often found trying to recruit new members, as it has been proved time and time again that exercise is very good for people with MS. I am currently looking at funding to undertake a Physical Trainer course, in the hope of running some simple exercise classes purely for people with ms. I attend the gym on a daily basis, this keeps me fit mentally and physically.
I became a member of Many Scars in April 2018, when Many Scars met up in Dereham for a pub lunch/drinks. This was the first time that I’d ever met others, within my age group, with MS. I found the group very inspirational.
Many Scars continues to grow daily, and we are now attracting members from all over Norfolk plus Newcastle, London, Birmingham and SuffolK, with one member further afield….Qatar!
If you would like a chat, please don’t hesitate to contact me. firstname.lastname@example.org Many thanks